The EveryLife Foundation for Rare Diseases laid-out their policy priorities for Congress to educate them on the needs of the rare disease community. Read the full comments, and learn how EveryLife is working to ensure the voice of our community is heard for this important new legislation.
The EveryLife Foundation for Rare Diseases is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.
BIO Patient & Health Advocacy Summit, Washington DC, October 14-15, 2014
NORD Rare Disease and Orphan Product Breakthroughs Summit, Washington DC, October 21-22
Newborn Screening and Genetic Testing Symposium, Anaheim CA, October 26-30
Rare Voice Awards, Washington DC, November 13
Partnering for Cures NYC, New York NY, November 16-18