The NIH is expanding its role in assisting rare disease research. read more
Thanks to everyone who came out for our fifth anniversary! read more
The EveryLife Foundation for Rare Diseases laid-out their policy priorities for Congress to educate them on the needs of the rare disease community. Read the full comments, and learn how EveryLife is working to ensure the voice of our community is heard for this important new legislation.
The EveryLife Foundation for Rare Diseases is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.
Rare Disease Legislative Advocates’ In-District Lobby Days, Nationwide, August 4- September 5, 2014
FDA Meeting on Biomarker Development, Washington DC, September 5, 2014
Global Genes Patient Advocacy Summit, Long Beach CA, September 11-13, 2014
EveryLife Foundation for Rare Diseases 2014 Scientific Workshop, Washington DC, September 16, 2014
BIO Patient & Health Advocacy Summit, Washington DC, October 14-15, 2014