Announcing the 2015 Rare Artist Award Recipients
Rare Giving
Introducing our new Rare Giving program read more

Orphanet Publishes Foundation White Paper on Accelerated Approval of Rare Disease Treatments


The EveryLife Foundation has published a new white paper in Orphanet Journal of Rare Diseases to help increase access to the accelerated approval pathway for rare disease treatments. The paper is a result of the Foundation’s Annual Rare Disease Workshop, which worked to incluence FDA’s guidance required by FDASIA. As is the Foundation’s policy, the paper is free to all members of the public and is meant to help improve the development process for all rare disease stakeholders. For more information on the program behind this paper, please visit the Annual Rare Disease Workshop homepage.  To read more>>>

About


The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.

Currently, there are fewer than 400 approved treatments for 7000 rare diseases affecting more than 30 million Americans. read more

Events


World Orphan Drug Congress, Washington DC, April 22-24, 2015

Italian Street Painting Marin, San Rafael CA, June 27-28, 2015

4th International RASopathies Symposium, Seattle WA, July 17-19, 2015

Annual Rare Disease Scientific Workshop, Washington DC, September 15th, 2015

Discovery on Target, Boston MA, September 21-24, 2015

EveryLife Foundation Community Congress Meeting, Washington DC, November 4th, 2015

Rare Voice Awards Gala, Washington DC, November 4th, 2015

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Programs and Initiatives



Foundation Programs




Supported Programs