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EveryLife Foundation Submits Comments on First 21st Century Cures White Paper


EveryLife Foundation Submits Comments on First 21st Century Cures White Paper The EveryLife Foundation for Rare Diseases laid-out their policy priorities for Congress to educate them on the needs of the rare disease community. Read the full comments, and learn how EveryLife is working to ensure the voice of our community is heard for this important new legislation.  To read more>>>

About


The EveryLife Foundation for Rare Diseases is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.

Currently, there are fewer than 400 approved treatments for 7000 rare diseases affecting more than 30 million Americans. read more

Events


BIO Patient & Health Advocacy Summit, Washington DC, October 14-15, 2014

NORD Rare Disease and Orphan Product Breakthroughs Summit, Washington DC, October 21-22

Newborn Screening and Genetic Testing Symposium, Anaheim CA, October 26-30

Rare Voice Awards, Washington DC, November 13

Partnering for Cures NYC, New York NY, November 16-18

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