Introducing our new Rare Giving program read more
The EveryLife Foundation has published a new white paper in Orphanet Journal of Rare Diseases to help increase access to the accelerated approval pathway for rare disease treatments. The paper is a result of the Foundation’s Annual Rare Disease Workshop, which worked to incluence FDA’s guidance required by FDASIA. As is the Foundation’s policy, the paper is free to all members of the public and is meant to help improve the development process for all rare disease stakeholders. For more information on the program behind this paper, please visit the Annual Rare Disease Workshop homepage.
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We can do more with the science we already have and bring life-saving treatments to millions of people suffering from rare diseases.
Rare Disease Week on Capitol Hill, Washington DC, February 23-26, 2015
Rare Disease Day at NIH, Bethesda MD, February 27, 2015